SWAN nationally affiliated to the Autistic Rights Movement last year and set a precedent for doing the same with other service user groups and self-advocacy networks. Roderick Cobley from the London Autistic Rights Movement (LARM) was a guest speaker at the London SWAN monthly meeting in June. He provided an introduction to the concept of neurodiversity and its place in the social model of disability and how ignorance and discrimination against the ‘differently brained’ affects the lives of autistic people. The Autistic Rights Movement are campaigning against the medicalisation of autism and in favour of independent living.
In kind, LARM invited London SWAN to speak at their equivalent meeting this September. I went along and gave a background to SWAN, our anti-cuts activity and some of the highlights from our recent national conference. I didn’t discuss social work and autism, with sparse personal knowledge, but rather identified areas of potential relevance to both SWAN and autistic people: DLA medical testing, slashing access to Employment Support Allowance and the disgrace of £15bn saved by 2015 in welfare cuts overall against a projected £10bn via the banking levy. I went on to mention the radical tradition in social work and how collective action is poignant now, not just to fight cuts, but as a vehicle for denuding professional power differentials between workers and service users.
From this point, the meeting was a lesson for me! I was given a swift introduction to including people in our network and discourse via technology. One of the LARM members, for instance, was participating in the meeting by phone. SWAN could not only be more inclusive, but might widen its membership significantly with the use of Skype, telephones and various Web 2.0 technology.
As the conversation developed around inclusion we began to discuss appropriate communication for those with autism. Members shared with me their frustration at the depth of ignorance about autism shown by Department of Health officials over the recent Autism Strategy. If this wasn’t incredible enough, others suggested this was frequently an issue for the pan-disability movement – often basic matters such as failing to provide literature in appropriate formats. It appears the hierarchy of impairments is alive, well and does not favour those with Autistic Spectrum Disorders.
As we discussed changes to benefit testing, the direct impact of such changes became apparent. Those with ‘non-visible’ disabilities have raised concerns about how a medical assessment might miss fluctuating conditions and leave them in dire straits. One or two members were visibly nervous while we discussed this.
However, the sober mood of our discussion lightened as one of the members suggested that social workers refer to autistic people as the ‘service excluded’ rather than service users. How many social care service users will be able to identify with this over the approaching months and years? Another LARM representative said that while she was intimidated by news of cuts, she felt like chucking eggs at the government. We unanimously agreed that was the right kind of response.
LARM members indicated that radical social work could be common ground for dialogue between autistic people and social workers. With this in mind LARM plan to send delegates to forthcoming local and national SWAN events. They must be able to count on us to support their campaigning. Here emerges a wider network.
At the end of last year I was shocked to hear of plans to close the Accident and Emergency (A&E) Department at my local hospital, the Whittington in north London. Not only is it a vital service that I have used as a local resident, but I used to work there as a mental health social worker.
This is the biggest demonstration we have had in Scotland since the Make Poverty History protest in 2005. There were solid trade union contingents from all the major unions on the protest, including from the Unison public sector union, alongside large numbers of students, disability rights activists, pensioners and other campaigners. People were incredibly buoyed by the size of the protest.
As I marched I was witness to anger from some, frustration from others and acknowledged a sense of loss, worry and an inherent desperation from those whose work in the public sector hangs in the balance, along with the support of those most in need in our country. The march may not yet have changed the government’s perspective, however, it made me think about those in history who have fought to change the consciousness of the oppressors. Their fights have been long, their battles painful, but they kept on marching. I am determined to carry those same principles. I march with my head high, my eyes forward and my voice heard, because my actions are for those who are being made voiceless. In my opinion, that is the heart and the true value of social work. I would even go as far to say that is the real vocation of every social worker.
The march, organised by Red Road Residents, the Glasgow Campaign to Welcome Refugees, Positive Action in Housing and the Unity Centre, had two main aims. The first was to remember the Serykh family and call for an immediate end to any further enforced removals of refugee families by the UK Borders Agency. The second was for the immediate return of Stephanie Ovranah and her twin six year old sons, Joshua and Joel, to their friends, neighbours and local church in Glasgow’s Cranhill where they have lived for past five years. The family were detained at Brand Street Reporting Centre without warning last Friday with the children still in their school uniforms. They are currently held in Yarl’s Wood Detention Centre. For more information and to support these campaigns contact
Speaking at the conference Roger Kline of the ASPECT union and author of What If? pointed out that the Centre for Excellence and Outcomes in Children and Young People’s Services trains senior managers to “translate ‘soft outcomes,’ such as happiness, healthiness or well-being, into a solid performance measurement”. Continuous recording of these ‘outcomes’ dramatically changes how we work. For example, while computers could be a tool to improve practice, stress about cumbersome systems and targets means that instead they contribute to an already high level of work related sickness and burn out amongst workers.
Under New Labour this ethos was insidiously undermined. Funding was linked increasingly to targeted groups of ‘dubious and demonised’ youth and the illusory imposition of prescribed behavioural outcomes – the very antithesis of the youth work process. Under the Coalition the assault has escalated. The very existence of provision in the service of young people is under threat. Across the country local authorities are abandoning wholesale their commitment to youth work, hiding behind the notion of ‘commissioning’ to the lowest bidder from the private or Third Sector. Or they are shifting the reduced resources available into Early Intervention programmes aimed at ‘problematic’ families, whereby youth workers without negotiation or agreed in-service training become quasi-social workers with identified case-loads.
It’s worth reminding ourselves of the scale of the march. The demonstration started at 11am and people were still leaving the Embankment at 3pm! Estimating numbers is never easy, but 500,000 is not excessive. My transport dropped me at Hyde Park and I had to walk the route to join the demo. I met the march at Trafalgar Square – with the Unison block leading the way. I waited at the square to see if I would recognise anyone to march with (some hope!) two hours later the Unison block was still filtering past.
The day emphasised something that SWAN has been saying for some time: service users and workers together, in joint action and in common cause, can defeat the cuts onslaught.
After a period of destitution, Sulaiman claimed asylum in the UK, and was placed in foster care in Greater Manchester. He lived with his foster family for over a year, attending Stockport College. However, a social worker conducted a ‘Merton-compliant’ age assessment and incorrectly claimed that Sulaiman was over 18. (He was 15, as was later, eventually found by the UKBA) As a result, Sulaiman was taken away from his foster family. Appallingly, Sulaiman was never consulted over this; he was simply moved from the foster home to live alone without legal or emotional support.
The Comprehensive Spending Review brought a 23% real terms reduction to Home Office spending over the next four years. The Home Office has confirmed that cuts to support for asylum seekers are disproportionately greater than to other Departmental areas. These cuts have been handed on to Local Authorities by the UKBA through changes in the grant structure for funding care services.
The austerity measures however need to be seen in a wider historical context. What “disability” is and how it impacts upon people with impairments’ lives is still being contested. Disabled people are an easy target because the dominant views associated with defining “disability” within society has socially constructed them as being ‘dependent’ and unable to fully participate within society due solely to their impairments. This view, supported through negative and pejorative stereotyping, distorts who we are and the causes of the disabling barriers we face. Inappropriate and misleading labels such as “the disabled” or “vulnerable adults or children” reinforce prejudices and discrimination.